National Aboriginal and Torres Strait Islander Cancer Control Indicators
Cancer Australia developed a set of National Aboriginal and Torres Strait Islander Cancer Control Indicators (NCCI) to monitor performance across the OCP areas. There are 22 indicators in total, and progress in these areas is assessed using 57 measures. No data exist for over half of these measures, and as a result we cannot monitor progress in a range of areas.
It is essential that data about our attitudes, beliefs and experiences of cancer be developed and governed for and by Aboriginal and Torres Strait Islander peoples.
The Kulay Kalingka Study will provide Aboriginal and Torres Strait Islander led, designed, and governed national-level data across the NCCI measures to monitor and guide improved cancer awareness, understandings of care, treatment, and service delivery for Aboriginal and Torres Strait Islander peoples.
The Kulay Kalingka Study Protocol paper details how the Study was developed and how survey data will be collected. It tells the story of the study development, community partnerships, and strong Indigenous Data Sovereignty principles. The paper also outlines how Study data will be handed back to partner communities, and how the Study intends to make change to better the lives of Aboriginal and Torres Strait Islander peoples and communities. Read the Kulay Kalingka Study Protocol Paper below.